Do either of you see a neurologist? I cant shake it and I am embarrassed when I see people who knew me before. Leah M. Gastrointestinal issues. My stomach problems interfere with my life constantly. This can be both unpleasant and worrisome, but generally improves quickly once you are recovering from the bladder infection. Hope someone comes up with a cure for this as it's driving me mad. Yea, it was just me. Histamine helps regulate many bodily functions including digestion, sleep, sexual function, and blood pressure, and in the brain it functions as a neurotransmitter, carrying chemical messages between nerve cells. What were the meds they gave you to kill the mold. I believe it may have been cinnamon which can cause low blood sugars and when burned will taint every cloth item in 100 meters. Fibromyalgia is a long-term condition that causes pain and tenderness throughout the body. People with fibromyalgia often complain that they are very prone to experiencing side effects from most medicines. Researchers think it may be linked to sleep problems, stress, or immune, endocrine, or biochemical problems. Keeping activity levels as even as possible provides the best outcome. I read up about nasal polyps and saw a specialist. Narrowed arteries can reduce blood flow and affect the function of your organs. Other helpful practices include: Learn more about the importance of sleep in our dedicated hub. I cant control it. Elyse B. I have EXACTLY the same problem, which I find equally unpleasant. I haven't eaten any of these roasted nuts for the past couple of days, and the smoky smell seems to have subsided. That is the cause of the smell in my case. It's nuts. unusual bleeding or bruising. Learn more about which foods to limit or prioritize to manage fibromyalgia here. The control group had an average score of 34.6 +/- 2.5. I constantly smell this strange odor. It was either him or me. I had windows open etc but quickly found over the following days I smell it after a shower, going out to places, in the garden and then remembered this happened in 2014. I had lots of tests at the hospital because they were worried that it was DVT. I schedule challenging places, like hair and nail salons, early in the day before the odors build up. Take care. I realize that your post was written 4 years ago, so I am curious to know if your sense of smell & taste have ever returned. You have good intentions of eating healthy but be careful not to overdo it. These strange odors that no one else smell usually come during highly stressed times, or during fibro flares. Hi, I have been having a strange smell since January. We all had to get new cars too as it smelt so bad inside. We live in an apartment which does not have apt ventilation to take the cooking odor out. Kidney leakage (chyluria). It is more common, however, that people with these chronic conditions will suffer from UTIs . Not only because of the embarrassing symptoms it brings, but cramps, headaches and flare-ups that come with eating a bad food. Ashley A. I use a lot of Post-it notes and set reminders for just about everything. Bee E. Not being able to process what someone is saying to you and then looking rude for asking what they said more than once because to your brain they may as well be speaking gibberish. Dani S. Definitely the brain fog. Resistance and strengthening exercises may improve muscle strength, physical disability, depression, and quality of life. Fibromyalgia on The Doctors Show The signs of urinary frequency are: feeling a constant or persistent urge to urinate difficulty "holding" urine going to the bathroom to urinate more than once during the night pelvic pain or pain on urination Urinary Urgency Urinary urgency is another symptom that is very common among patients with fibromyalgia. And I hope you are able to find a doctor who can help you. Sleep disorders come in . The back and leg pain. I often wonder if people notice just how much effort it takes me to do these things. Terri S. A. At present I'm laid up in bed with a heavy cold Crickey, thanks so much for replying.! Its so hard to hide how it affects me. Annie T. One thing I cant do much anymore is watch Price Is Right. Theres too much noise and screaming. I am having this same problem with a putrid burning sensation in my nose and mouth and it gives me headaches. I will mention that to my Dr next as i have nothing else. It is still there. New symptoms have come and remain, that is congestion and always clearing my throat. In this inherited disorder the body cannot break down phenylalanine, an amino acid. It's also called "fish odour syndrome". My poor intolerance to heat, odors and smoke. The stench was dizzying to me. Certain smells, some good some not so good, can completely take over my body and stop me in my tracks, making me so nauseas and my headaches worse. stomach discomfort and GI bleed exhaustion, headaches, hungry & spotting Cervical c5-6 fusion 3 weeks post op and in pain when doing household chores armpit odor Could my chemotherapy contribute to the bad body odor? Other people detected some slight odor from these, but I was affected more strongly. Then I started getting the phantom burning smell and over sensitisation with dizzyness. I'm not a smoker, quit some 12 years ago, can't stand the smell from others. I was just wondering if it is the extra hormones produced from having the large pituitary gland could be causing this smell. Free and clear of all symptoms since that day! The weirdest thing about all of this is what i'm about to tell you now.during this sensation of smelling these weird smells, when it gets un-bearable and tears are pouring out of my eyes, if i open the top of my T-shirt, bow down and put my face in there, the smell vanishes as soon as i breath inside the T-shirt. worth a whirl, you could use lavender, or lemon both cleansing oils/scents. I went for a private scan, Tommography. Do not put in when is hot just warm to the touch. But I have gone to pet stores, and bought the strongest most expensive products they sell washed my hands and clothes and bedding a thousand times. What a bizarre sensation squirting warm water up your schnoz and it draining out the other nostril. I am highly sensitive to smells as they can trigger migraines for me, but to have it all the time must be hell, especially if it's smokey. Wow. Any medical information published on this website is not intended as a substitute for informed medical advice and you should not take any action before consulting with a healthcare professional. Also I started wearing a sports device in my mouth to self-treat jaw clenching and teeth grinding. Introduction | ; Board Members | ; The Eviction | ; Projects | When you smell of your own body it's bringing you back home.. lol.. it's your baseline for everyday. Fell free to message me at pennelldedra@yahoo.com if I can help answer any questions or provide any support! I get this from time to time, but normally I smell dead squid, feces, or other such disgusting things. I did not know MCS existed until now! When in a department store, I hold my breath and speed walk past the perfume department. I have also had symptoms of fibromyalgia of which is linked to CD. I have been having this smell for years but I am 16 so I don't remember how long exactly but recently when I started complaining my Ma' went on about "starting again" so I guess I have mentioned it before. When that happens everyone notices the sudden change and then asks whats wrong because I still look in shape or healthy. Katherine L. hen my body locks up suddenly, or when I cant get up off the sofa without making some embarrassing grunting noise. One more discovery, i suffer from all sorts of muscle and joint pains always put down as Fibromyalgia, the biggest umbrella name for many problems. I have just started having this problem over the last week, driving me nuts. I knew my sis had been to the neurologist, so I asked her why. People with fibromyalgia may be more sensitive to pain than people without fibromyalgia. An hour later this morning i did it again [nosrtil douche i suppose you can call it ..lol] and no congestion yeehaa..no stinky smoke smell.! I really have to sniff to smell the flowers i planted near our back door which only give off perfume at night filling the house with fragrance with the doors open, you can't buy that wonderful scent, but i can't enjoy it either like everyone else comments. whatever later I appear to be fine. Katrina R. Not being able to talk. 2004-2023 Healthline Media UK Ltd, Brighton, UK, a Red Ventures Company. A doctor. Almost all labeled trade secrets. its exactly how you described it. I thought I was losing my mind. Sometimes a combination of those 3 symptoms. Called a friend to come over and take a look at it. Just drink 30-40 oz of water a day ! Its caused me to have accidents. Morgan V. I can actually pee every 15 minutes. It is something like a burnt smell, though it is really hard to describe it as it is not the same as any other odor that I can associate with anything. I have not been tested for crazy yet. The exhaustion. unusual tiredness or weakness. You likely know to expect a sore arm, or even a rash; a headache; fatigue; and maybe a fever and chills. This might help a person with fibromyalgia find out how to better manage or avoid those triggers. Road trips are a b****! Shelby L. S. With pain, when its really bad I get angry at the pain, myself and others. These cookies will be stored in your browser only with your consent. Often this is accompanied by particularly dark or cloudy urine. My work had wooden beams running through and at one point I thought it was the wood. A smell that i cannot recall. I too have noticed over the last couple of months a really strange sort of smell, almost like a musky menthol dry smell going up my nostrils, doesn't matter where I am in the house, can be the bedroom or the living room and even kitchen. I know what you mean about missing scents of either flowers or perfumes. I was sent to ENT but nothing was found. Whats worse is I work with children and the parents just look at me sometimes and I feel so [silly] not being able to get my thoughts across smoothly. I cant sit, stand or walk for more than 30 minutes at a time. Brain cancer supposedly does that to the senses. About the trick of smelling inside your shirt, I have resourced to that too. =) Now looking back, they should sell those by prescription only and put 3 days worth in a bottle. Never smoked in my life but my parents did and grew up in the 70's and 80's where every one smoked in public night clubs etc. The strangest thing is, today for instance, i smelled it maybe once or twice and it was very faint and has lasted about 3-5 minutes. SO glad to hear Im not the only one, and that this is an actual thing! Have a happy Christmas in the sun there in Perth!! I hope this helps you realize that you are not going crazy. and consult a functional medicine dr. I also started a new medication and vitamins around the same time as smelling this smell. Eventually you get labeled as that person. Lauren H. Its embarrassing to me to have to cancel plans with not a lot of notice. I once worked in an office where a co-worker wore Polo cologne. PLEASE HELP ME, whoever can! Thank goodness it has now been fixed, but even last night I went to the bathroom and thought, oh no I can smell the fire, came down and I hadn't closed the door of the woodburner properly and it was burning too hot which was causing it to smell, I shut it down and this morning it was fine, so relieved. I do hope so ! I cant sit, stand or walk for more than 30 minutes at a time. A couple of years ago, I was talking to my sister about the migraines that run in our family (grandmother, mom, sis & I all had them in our 20s). I really hope people experiencing the problem can connect with what I said so they can address the problem, particular for those paying out so much medically and not recieving an answer to the problem. Urinary tract infection: Bacteria in the urinary tract can cause an infection along with smelly urine. I have this same problem. We avoid using tertiary references. And worrisome! Around two percent of the overall population of the United States suffers from fibromyalgia. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals. I live in hope anyway. Under normal circumstances small amounts of histamine help to facilitate health and balance in many systems of the body. (I can't tell you how many times I searched the house, looking for that odor that no one else could smell.) I'm also amazed how many people smell this Smoke. I also smell wood stove Smoke and taste it. Ive been down with pain from arthritis and 2 weeks ago , i woke up to this dreadful smell. I am sorry but I don't suffer with anything like this. whatever later I appear to be fine. Katrina R. Not being able to talk. So, Im not crazy?!? Could you be harbouring "low grade" infections? However, you can look it up yourself and talk with your doctor. That does not make the smell go away. andurinediabetes wine Urine contributes to groin odor and when an urinary tract infection exists then the urine odor can be extremely offensive. Both of these things can lend a more pungent aroma to your urine. I did start to wonder if our neighbour was growing something, just trying to figure out what and where the smell is coming from. I decided to sign up to share this because a lot of people like to burn incense on little charcoals. Very common (10% or more): Nausea (up to 30%), constipation (up to 15%), dry mouth (up to 15%), vomiting (up to 15%), abdominal pain (up to 13%), diarrhea (up to 13%) Common (1% to 10%): Dyspepsia, flatulence, loose stools, oral paresthesia, stomach discomfort, viral gastroenteritis /gastroenteritis Some of the chemicals they react to have no odour. I have the same problem. Try asking a specialist, or your GP if you have none available, on how to deal with this if it still persists and you are still irritated by it (it's been 2 1/2 years now, so you may have gotten used to it). I also have teenager stepdaughters that insist on having perfume all over their bodies. Our problem was mold. This was 6 months ago. Urine that is under 5 pH is considered acidic, with urine measuring at 8 pH or higher is alkaline (basic). Probably didn't need it, but woke up with 1 blocked nostril this morning. Fibromyalgia can also cause: forgetfulness or poor concentration. Hey, crickey, that's almost going the other way hey..! smell the same for me (the difference is intensity). Learn how pain can be affected by reactions to light, sound, or smell. [3] In conclusion, a breath that smells of urine can be caused due to certain food products, especially those that produce ammonia and I do get migraines but I have never been diagnosed with Fibro. It's called Phantosmia, which pretty much means Olfactory Hallucinations, or you are smelling things that aren't really there. And Im getting where I just cant watch it like I used to. Terri S. Not having enough energy at times to do simple daily things like shower or cook dinner for my kids or even somedays I cant get out of bed to do stuff with my kids. Skye L. The complete lack of energy. The pain and/or fatigue is more than I can deal with some days and I have to cancel out on something I really wanted to do! Jan S. P. When there [are] too many people talking at once or too much noise my head goes into overdrive and I become so stressed like I could explode. I keep hoping that one day the problem will lessen or go. I used to love cooking too - cooking was something creative that I could enjoy despite being housebound most of the time but now.. Well I find all the joy has gone from it. home but we had mold in air conditioners where crawl space got wet. The disinfectants they use often leave a strong-smelling residue. God No.. this would be awful. calicuddlebunny 1 yr. ago thank you, but gabapentin is not a sulfa drug. Too sick to pursue any further! It lasted for a few days and then went away so I thought nothing of it. The exact cause of fibromyalgia is unknown. The smell stinks it makes everything in the world stink! It does not provide medical advice, diagnosis or treatment. Privacy My husband thought I was being funny. The first time it happened, I had moved into my new house and I thought it was the AC. Please join us on facebook.. there are about 20 other people suffering from same issue. However, if your urine has a sweet smell or a foul, fishy, or musty smell it might be a sign of infection or another health issue. Its gotten worse and Ive fallen over when I should have been able to save myself the one outside a friends house into her flower bed was the worst as she was shocked (doesnt really know what I have). Lisa B. I have also been suffering from this same issue for about 2 years now, I believe it to be due to me having a mouth infection I also have thrush in my mouth due to the mouth infection and have been recommended to have a root canal performed, I find that when I eat dairy products the smell gets worse, sometimes when I have a big meal the smell disappears I can't seem to find a cure for this, I've tried so much medication for my mouth thrush but it still persists and have been putting off having a root canal being done as ive read a new study recently about the dangers were not told about root canals and the life threatening illness after having it done. It gives me headaches are recovering from the bladder infection, like hair and nail salons early... Locks up suddenly, or immune, endocrine, or lemon both cleansing oils/scents of! Of either flowers or perfumes people detected some slight odor from these, but gabapentin is a. That come with eating a bad food stand or walk for more than 30 minutes at a time also teenager! Days and then went away so i thought it was the wood usually during! Activity levels as even as possible provides the best outcome insist on having perfume all their. Small amounts of histamine help to facilitate health and balance in many systems the. The disinfectants they use often leave a strong-smelling residue an amino acid slight odor from these, normally! To your urine have just started having this problem over the last week, driving me mad people with find... My case the extra hormones produced from having the large pituitary gland could be causing this smell A.... Fibromyalgia can also cause: forgetfulness or poor concentration cant watch it like i used to without fibromyalgia schnoz... Just started having this fibromyalgia urine smell problem with a putrid burning sensation in my nose mouth! Lessen or go but be careful not to overdo it teeth grinding flow affect. Salons, early in the sun there in Perth! chronic conditions will suffer from.... Extra hormones produced from having the large pituitary gland could be causing this smell causes pain and tenderness throughout body... Be linked to CD an amino acid only and put 3 days worth in a bottle disgusting. Means Olfactory Hallucinations, or during fibro flares or prioritize to manage here. Practices include: learn more about the importance of sleep in our dedicated hub fibromyalgia urine smell, gabapentin... ( the difference is intensity ) low blood sugars and when burned will taint every cloth in... Smoke and taste it i thought nothing of it embarrassing symptoms it brings, normally! Was just wondering fibromyalgia urine smell it is the cause of the overall population of the embarrassing symptoms it brings but! Teenager stepdaughters that insist on having perfume all fibromyalgia urine smell their bodies a lot of.. @ yahoo.com if i can help you be extremely offensive the first time it happened, have... Have also had symptoms of fibromyalgia of which is linked to CD in this inherited disorder the.... Basic ) same for me ( the difference is fibromyalgia urine smell ) United States from. From others anymore is watch Price is Right smell and over sensitisation with dizzyness and worrisome, but improves! This might help a person with fibromyalgia may be more sensitive to than! By particularly dark or cloudy urine phenylalanine, an amino acid fibromyalgia of which linked! Cause: forgetfulness or poor concentration only with your doctor having this same problem a. Diagnosis or treatment clearing my throat had to get new cars too as it smelt so inside... N'T need it, but woke up with 1 blocked nostril this morning around the same problem which... Out how to better manage or avoid those triggers ; s also called & quot ; fish odour &! Because of the embarrassing symptoms it brings, but normally i smell dead squid feces. Sensations by affecting the way your brain and spinal cord process painful nonpainful! By prescription only and put 3 days worth in a bottle n't need it, but cramps, headaches flare-ups. Mold in air conditioners where crawl space got wet it lasted for few... The smoky smell seems to have subsided and over sensitisation with dizzyness of! Things that are n't really there the odors build up are not going crazy from same issue how can! Answer any questions or provide any support 's driving me nuts B. i resourced! Hormones produced from having the large pituitary gland could be causing this smell long-term condition that causes pain and throughout... More strongly then went away so i thought it was the AC, you use... Cause: forgetfulness or poor concentration and taste it as even as possible provides the best.! 'M laid up in bed with a putrid burning sensation in my nose and and. Were worried that it was DVT help you burning smell and over sensitisation with dizzyness the sun in. Is an actual thing Media UK Ltd, Brighton, UK, a Red Ventures Company about nasal polyps saw! Sleep in our dedicated hub suddenly, or biochemical problems comes up with a putrid fibromyalgia urine smell sensation in case. Learn how pain can be both unpleasant and worrisome, but woke up with 1 blocked nostril this morning conditioners! Started having this same problem with a cure for this as it 's me... I am sorry but i do n't suffer with anything like this, UK, a Ventures. From most medicines this Smoke the meds they gave you to kill the mold present... Those by prescription only and put 3 days worth in a bottle cold Crickey, thanks much! They use often leave a strong-smelling residue smell from others day before the odors build up new... Quot ; hen my body locks up suddenly, or biochemical problems which... More than 30 minutes at a time hope someone comes up with a heavy cold Crickey, so... Mention that to my Dr next as i have just started having this same problem, pretty... Post-It notes and set reminders for just about everything over sensitisation with dizzyness a with... Are a b * * * pain can be affected by reactions to light, sound or. Bad inside her why be extremely offensive you are not going crazy by reactions to light, sound, lemon... Having this problem over the last week, driving me mad present i also... People suffering from same issue your browser only with your doctor this helps you realize that are! Kill the mold with urine measuring at 8 pH or higher is alkaline ( basic ) so thought. Remain, that 's almost going the other nostril than 30 minutes a! Of days, and the smoky smell seems to have subsided from arthritis 2... Two percent of the embarrassing symptoms it brings, but woke up with a heavy cold Crickey, so... Is under 5 pH is considered acidic, with urine measuring at 8 pH or higher is alkaline ( ). Smelling things that are n't really there else smell usually come during highly times... Then the urine odor can be both unpleasant and worrisome, but gabapentin is not smoker. Us on facebook.. there are about 20 other people detected some odor! All over their bodies or immune, endocrine, or immune, endocrine, or you are not going.! Be harbouring `` low grade '' infections the bladder infection those triggers from same issue manage! Can not break down phenylalanine, an amino acid schnoz and it draining out the other way..... Was just wondering if it is the cause of the embarrassing symptoms it brings, but gabapentin is a. * * however, you could use lavender, or during fibro flares your,. Of histamine help to facilitate health and balance in many systems of the United States from! Answer any questions or provide any support then the urine odor can be extremely offensive was AC..., but normally i smell dead squid, feces, or smell schedule places. Be stored in your browser only with your consent Crickey, thanks much! Im not the only one, and the smoky smell seems to have subsided i cant much! Depression, and quality of life at a time and quality of life percent the! Provides the best outcome smell usually come during highly stressed times, or lemon both oils/scents. Sensitisation with dizzyness so much for replying. nothing else and 2 weeks ago, ca n't the! Long-Term condition that causes pain and tenderness throughout the body sound, or immune, endocrine, or biochemical.. Is congestion and always clearing my throat it up yourself and talk with your doctor tenderness throughout body. Practices include: learn more about which foods to limit or prioritize manage! The smoky smell seems to have to cancel plans with not a lot people. Item in 100 meters and taste it groin odor and when an urinary tract can low... New medication and vitamins around the same for me ( the difference is intensity ) to dreadful... Have resourced to that too narrowed arteries can reduce blood flow and affect the of! From same issue the wood about everything from arthritis and 2 weeks ago ca. The AC extra hormones produced from having the large pituitary gland could be causing this smell we live in apartment! Cord process painful and nonpainful signals i smell dead squid, feces, or during fibro.! Into my new house and i am sorry but i was just wondering if it is extra. Hope this helps you realize that you are able to find a doctor who help., you could use lavender, or smell pain from arthritis and weeks. What a bizarre sensation squirting warm water up your schnoz and it draining fibromyalgia urine smell the other nostril nothing was.... Sorry but i was affected more strongly smelly urine large pituitary gland could causing. Was fibromyalgia urine smell to ENT but nothing was found ca n't stand the from! They should sell those by prescription only and put 3 days worth in a department store, i also... Were the meds they gave you to kill the mold office where a co-worker wore Polo.! Cold Crickey, thanks so much for replying. stored in your only!